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Background: Cerebral palsy is the most frequently reported motor impairment in childhood, with a high prevalence in African countries. Children with cerebral palsy require long-term care from their caregivers. The long-term dependence may lower the level of quality of life of the caregivers.
Aim: This study aimed to assess the level of quality of life and its determining factors among caregivers of children with cerebral palsy.
Methods: A cross-sectional survey design was conducted with fifty-one caregivers of children with cerebral palsy. Hausa translated version of World Health Organization Quality of Life-Bref (WHOQOL-Bref) was used to assess the quality of life of the participants. Functional ability of the children with cerebral palsy whose caregivers were recruited in the study was assessed using Gross Motor Function Classification System Expanded and Revised (GMFCS-E&R). A multiple regression analysis was used to predict different domains of the caregiver’s quality of life.
Results: Majority of the caregivers (72.0%) were females. They presented with lower level of quality of life (<60 points in all domains of WHOQOL-Bref). Findings from multiple regression analysis indicated that the educational status of the caregivers of children with cerebral palsy significantly predicts (p=0.00) different domains of their quality of life, including; psychological, environmental and physical health. Other significant predictors of psychological domain of the caregiver’s quality of life are child birth order (p=0.02) and caregiver’s age (p=0.00).
Conclusion: Caregivers of children with cerebral palsy have low levels of quality of life. Child birth order, caregiver’s age and educational status are strong predictors of quality of life among caregivers of children with cerebral palsy.
Keywords: Quality of life; Cerebral palsy; WHOQOL-Bref; GMFCS-E&R; Caregivers
Résumé
Contexte: La paralysie cérébrale est la déficience motrice la plus fréquemment signalée dans l’enfance, avec une prévalence élevée dans les pays africains. Les enfants atteints de paralysie cérébrale ont besoin de soins de longue durée de la part de leurs soignants. La dépendance à long terme peut abaisser le niveau de qualité de vie des soignants.
Objectif : Cette étude visait à évaluer le niveau de qualité de vie et ses facteurs déterminants chez les soignants d’enfants atteints de paralysie cérébrale.
Méthodes: Un plan d’enquête transversal a été mené auprès de 51 soignants d’enfants atteints de paralysie cérébrale. La version traduite en haoussa de Qualité de vie - Bref de l’Organisation Mondiale de la Santé (WHOQOL-Bref) a été utilisée pour évaluer la qualité de vie des participants. La capacité fonctionnelle des enfants atteints de paralysie cérébrale dont les soignants ont été recrutés dans l’étude a été évaluée à l’aide du Système de Classification des Fonctions Motrices Brutes Elargi et Révisé (GMFCS-E & R). Une analyse de régression multiple a été utilisée pour prédire différents domaines de la qualité de vie du soignant.
Résultats: La majorité des soignants (72,0%) étaient des femmes. Ils présentaient un niveau de qualité de vie inférieur (<60 points dans tous les domaines de WHOQOL- Bref ). Les résultats de l’analyse de régression multiple ont indiqué que le niveau d’éducation des soignants aux enfants atteints de paralysie cérébrale prédit de manière significative (p = 0,00) différents domaines de leur qualité de vie, y compris; santé psychologique, environnementale et physique. D’autres prédicteurs significatifs du domaine psychologique de la qualité de vie du soignant sont l’ordre
de naissance des enfants (p = 0,02) et l’âge du soignant (p = 0,00).
Conclusion: Les soignants d’enfants atteints de paralysie cérébrale ont un faible niveau de qualité de vie. L’ordre de naissance des enfants, l’âge et le niveau d’éducation du soignant sont de solides prédicteurs de la qualité de vie des soignants d’enfants atteints de paralysie cérébrale.
Mots-clés: Qualité de vie; Paralysie cérébrale; WHOQOL- Bref ; GMFCS-E&R; Soignants
Correspondence: Mr. U.M. Bello, Department of Physiotherapy, Yobe State Teaching hospital, Along Potiskum road, Damaturu, Yobe State, Nigeria.
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